Saturday, June 15, 2013

A Little Update



A little update.
As you may have already heard, a recent CT scan has found a significant (softball) sized tumor in my pelvic area.  We aren’t sure of anything more yet. I have met with the Gynecologic Oncologist, and he says it is most likely benign, but it needs to come out—along with my uterus, and possibly my ovaries.  I go back on the 24th to have a pelvic ultrasound, which will better determine the exact location of the tumor, and where it is attached.  I am fairly certain based on symptoms that it is not inside my uterus, which leaves outside the uterus, or on one of the ovaries.  If it is ovaries, I will be starting menopause in a month or so, because any choice of not having them removed is not up for discussion if the tumor is attached there.  Not worth the risk of ovarian cancer now or in the future.
I may yet have the opportunity during my hysterectomy to have part of my tummy removed.  The only hang-up is whether insurance will agree with 4 of my doctors that it is a medical necessity.  I am a bit stressed about this hurdle, and could use some prayers and good thoughts.  I was actually trying to have this done before the tumor was found, and was denied, and then my first appeal was denied.  I have had two different people at the insurance company tell me two different ways to get this covered.  I feel almost like I am on a game show.  If I pick the wrong one of two doors, then too bad for me.  More diligence is apparently in order.  Also, the surgeon’s insurance coordinator says that it is up to me to file the appeal.  The insurance company says that the ordering physician is required to file for the appeal.  If this is the case, I may be stuck.  I hate the thought of not being able to have this part of the surgery based solely on that type of technicality.  It just makes sense that it should be covered, and I should have both surgeries simultaneously and take care of everything including healing time and anesthesia all at once.  Whether or not it is to be so, which I pray that it is, it seems that I must be content with the outcome.  I could still have the additional procedure, but I can’t afford it on my own.  I am worried that my incision won’t heal well and I will have more pain from the weight of my large stomach pulling at the stitches and laying on top of the incision.  Not to mention that it already causes me to have rashes and exacerbates my low back pain.
Also on the 24th, I will meet with the plastic surgeon again.  The next morning, I will again meet with the G.O. and we will start making plans for surgery.  I likely won’t be able to have my hysterectomy, etc. until sometime after the first week of July, as my supervisor is out of the office that whole week.  There are only two of us in the office, so only one of us can be gone at any given time.  Recovery time will most likely be 6 weeks.  Thankfully, I have a great job with good benefits, and I will be able to use paid leave for a large portion of my time off.  I also was smart enough to sign up for AFLAC’s short-term disability coverage last year, which will pay me 80% of my salary after the first two weeks I’m off.  It’s not the full amount, but it beats the band compared to no income at all for a month.
So as usual, there is good news and bad news.  More to the point, there is good news, and the stress of not knowing exactly what comes next.  Prayers are needed. No; coveted.

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